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Share your story

Do you or your child have a TUBB3 diagnosis?
We would love to share your story!

Share your story now and be entered to win a FREE 2026 conference registration!

( Your words and pictures will be displayed on our website and possibly other publications. )

Thank you! After submitting this form, please send at least 4 photos of your TUBB3 individual to: photos@tubb3foundation.org. (more details below this form)

Don't forget the photo release!

If you haven’t already sent photos, please email at least 4 photos of your TUBB3 individual to this address: photos@tubb3foundation.org 
Images should be clear and good quality. They will be displayed along with your story.

After sending your pictures, please click the button below to fill out our media release form for anyone included in your pictures. This is required for us to be able to use your pictures.

Media Release Form

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The Content provided by this website is for educational, communication and information purposes only and is not intended to replace or constitute medical advice or treatments. Please consult with your own physician for medical advice.

© 2023 TUBB3 Foundation